Monday, January 24, 2011

Grateful

Briony got sick on Saturday - nothing life-threatening or earth-shattering, just a typical January cold.

Having a sick baby is never fun, but it took a turn for the SUCK this weekend when Geoff was scheduled to work nights on Sunday and I got *just* sick enough to have all my fibro symptoms seriously flare up last night. Briony + I had a rough night and a rough (early) morning, and I was just about in tears thinking about how we would manage today.

Then Geoff stopped and got the groceries I needed on his way home from work this morning.

Then Katie offered to come and play with Briony for a couple of hours.

Then Amber agreed to stop by after work to help me with Briony's dinner + bedtime.

It's still a difficult day, but I am completely overwhelmed by how our little family is blessed with people who love us and help us function. It's the only way to successfully parent with a chronic illness. I actually think it's the only way to successfully parent PERIOD.

It's definitely taking a village over here. And our little village ROCKS.

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Friday, January 21, 2011

My Day is Coming

Nessie, one of my fellow Chronic Babes - and a fellow blogger - shared this verse on her blog today...

God will let you laugh again. You’ll raise the roof with shouts of joy.
Job 8.21

The truth in those words just cut straight to my core tonight. My eyes immediately filled up with tears - tears of hope and of longing. Because I believe in my heart that my day is coming. And I believe that it's coming SOON.

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And Counting

We're at Day 17 of my psychoallergenic diet and counting here - emphasis on the 'and counting' because I think it's going really well.

I'm finding lots of recipes - and DELICIOUS recipes - and while it's a lot of work, there is huge payoff there. I'm actually slamming together a blog of the recipes we've tried and enjoyed so far, both to help me stay organized and to maybe help someone else out there who's trying to eat this way. Stay tuned.

I am NOT one to blog about my weight, but I have to say that it's looking like a little bit of weight loss might be the icing on the cake (pardon the pun) in this situation. I've been eating more than usual - bigger portion sizes, more snacks, less attention to calories (ahem NO attention to calories) - just sticking with my list of foods I can eat and food I can't eat. And I've lost 4.5 pounds in 17 days. And I've been too flared up to exercise other than Briony's weekly toddler dance class and one fifteen-minute yoga session last week. If I've confided in you about my weight loss challenges post-baby before, you'll know that this is HUGE.

My energy level has been in the toilet since I started this, but I've been feeling tiny glimmers of hope over the last handful of days... I think that energy kick I've been expecting is coming soon. I CAN'T WAIT.

Day 17 is also EXACTLY the halfway mark between starting this on my own and beginning the accompanying acupuncture treatments that are supposed to go alongside my freaky eating.

In any case, I'm here and I'm carrying on...

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Wednesday, January 19, 2011

A Really Good Day

I am ever so grateful for my parents.

Briony + I spent the day here while Geoff was at work. I hit a bunch of client + volunteer deadlines. Briony had a nap + played + coloured + 'helped' Grandpa with home renos (FUNNIEST TODDLER COMMENTARY EVER).

It was just a really good day.

Today is also Day 15 of this new journey to reclaim my health. And I have not cheated on this diet, not one single bite. I'm super proud of that. It's been really tough. I'm still feeling so many yucky fibro flare up symptoms - and I'm EXHAUSTED - but I'm doing this and it has finally started feeling like positive progress over the last two days or so.

It only gets better from here... And that makes me happy, because I want my life back. And I want to ENJOY it fully.

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Monday, January 17, 2011

Randoms

I made Pumpkin Spice Muffins today. Without gluten, dairy, or refined sugar. And they're actually pretty good. You may bow down and worship me now.

Our beloved babysitter Katie has her arm in a cast, and I *may* have momentarily panicked when I got her text. Which is hilarious, because her original text was immediately followed by a second text that said LINDSAY, DO NOT PANIC. Am I so transparent + predictable? :)

My parents are chock full of awesome. They went grocery shopping last week and stocked up on things like vegan butter and honey and organic brown rice so that I can come and visit - and eat while I'm there. I can't even find words to describe how much it means to have them supporting this freaky eating thing I'm doing right now.

I had to un-follow a bunch of girls on Twitter this week - fellow chronic illness babes who were just WAY TOO NEGATIVE. All the time. Yikes. I totally understand how hard it can be, but I still believe that life is more good than not and I just don't want to dwell on the 'not.'

Remember the creativity course I took this past fall and was all fired up about? Well, real life reared its ugly head and I didn't end up finishing due to flare ups and client deadlines and just general ickiness. The artist who runs the course knew this and offered me a spot in the class re-run this winter - for free. Is that not the coolest thing EVER? I sobbed when I got her email. Just finished my first assignment (again) and I'm SO EXCITED for a second chance.

Two separate people have attempted to headhunt me for high level marketing jobs this month. Of course, they're full time and I needed to say no. But talk about a boost in self-confidence :)

Briony called me Lindsay today for the first time ever. She's been occasionally calling Geoff 'Geoff' for a loooong time, but it took her this long to attempt 'Lindsay'-ing me. And so it begins.

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Friday, January 14, 2011

Awesome Day

The snow outside when Briony finished her nap today was GORGEOUS. She was so excited, standing by the window and watching it come down. I blew her mind when I suggested that we could go outside and play in it (guess I've been sick for a while now... we've been spending an awful lot of time just snuggling on the couch inside).

It took most of the energy I had left. But it was *so* worth it. LOOK AT THAT SMILE.

We came inside and resumed our positions on the couch, Briony with 'hot chocolate' in hand (warm milk with a microscopic amount of hot chocolate mix) and babbling away about her awesome day.

It really kind of was.

At the end of it, I'm exhausted and in pain, but you know what? I was exhausted and in pain at the beginning of it anyway.



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Upside Down

I did NOT want to sit around and mope today. Okay, wait. That's not true... I TOTALLY DO, I'm just choosing not to. Anyway. Briony + I turned the great big frown that was this morning upside down and hauled out some paint and brushes for the first time in her two years + two months on the planet.

I didn't know what I had been saving it for. I know now that I was saving it for TODAY.

The result was kind of extraordinary... This kiddo got her Picasso on for an hour and a half before lunchtime. She had SO much fun. And you know what? I did too, just being around that kind of pure, unfiltered JOY :)




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More Quiet

I woke up this morning and realized that it was NOT going to be a good idea to take Briony to dance class today. I'm still feeling terrible. And now I'm feeling like a terribly bad mommy because she LOVES dance class and has been asking about it all week (especially because I finally found some dance shoes in her size). One of the prices she pays for having a sick mommy, and I HATE IT. It breaks my heart, even though I fully understand that she's two and she's already over it.

It's going to be a quiet day, but I hope it will still be a good one. I'm sure we can manage to make a memory or two in spite of the pain. I'm going to make sure that it happens.

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Thursday, January 13, 2011

Quiet

Sorry. I'm fully aware that it's been quiet around here lately. REALLY quiet.

The truth is that I'm not having a great week, and I hate putting negativity out into the universe like that. So I chose silence instead. I hope you understand :)

I've been doing a really good job at finding yummy recipes for my new diet - but it's taking *so* much energy to plan + prep meals, and I'm still feeling pretty lousy.

I'm in a definite fibro flare right now - full of pain + fatigue from my toenails to my hair follicles, fighting light + sound sensitivities, and definitely battling some depression - and I wake up every day hoping and praying and wishing to be better than I was the day before. The momentum is definitely going the other way right now. Geoff's working tomorrow and I'm scared to death of how I'm going to manage taking Briony to dance class (and then the rest of the day).

But today is almost over. And tomorrow is another chance for a better day. I won't say a good day because I still believe that they are ALL good days. But maybe, just maybe, tomorrow might be GREAT.

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Friday, January 07, 2011

Not Quite Dead Yet

Just checking in to let y'all know that I have not, in fact, starved to death.

This was kind of a tough week. I flared up, which is always a treat. The new diet's going well, but the second day in particular FLATTENED me - ridiculous detox headache + no energy at all. Today was better, but it will be a little while before I'm feeling more Lindsay-like. I'm spending every free moment I have in the kitchen trying to get things in my freezer and start getting some of the basics under control so the rest of this psychoallergenic eating adventure just gets easier and easier. This week, I was making salad dressings, soups, muffins, and all kinds of goodness (in addition to making meals). I also saw my rheumatologist again yesterday, which is another whole post that's coming soon. Briony's dance class started again this week. I'm beginning work on our MOMs Group website and newsletter for the new session starting in two weeks. We made some unexpected potty training progress (we're not officially underway yet, but she's progressing nonetheless - CLEVER MINX). I'm about to begin a tiny home makeover Chez Wright. And we booked flights for our next BC trip. Among other things.

So there's lots going on, and lots to talk about. And I will talk about it. But for tonight, I have a date with my couch and a GIANT bowl of popcorn :)

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Tuesday, January 04, 2011

No Regrets

I've had a bunch of questions about what on earth I'm up to, and I'll do my best to summarize it here. It's all happened relatively quickly and I'm learning as I go - eastern medicine and alternative therapy is always a HUGE learning curve when you've grown up in North American (and when you've quite literally grown up in a very westernized - probably western-BIASED - health care system). But this is kind of what's going on in a nutshell.

The new 'partner' I'm seeing is Dr Shi, a traditional Chinese doctor with additional training in acupuncture, allergy elimination therapy, and natural medicine - including NAET. Yes, I know how crazy it sounds. And no, I don't care. Geoff came along for my first appt and we're both 100% on board for me to try this out.

At my first appointment, she did a series of tests that involved me holding vials of different substances and based on my arm strength while I was holding them made a list of things that my body is treating as allergens right now. Next step is a series of seven appts where she eliminates those sensitivities - I'll hold a vial with one of the sensitive substances while she does acupuncture to clear the energy blockages related to each one, then totally avoid even TOUCHING that substance for the next 25 hours. Then supposedly I'll be 'cured' of that sensitivity.

For the next couple months, I'll be following a very specific allergen-free diet while everything is being cleared. I've also been put on a CRAZY multivitamin and a natural treatment for thyroid dysfunction - one of the things that she easily identified as a health challenge for me - along with a few supplements to balance out the foods (and associated vitamins and minerals) I'm yanking out of my diet.

My list of 'sensitivities' - things that my body is fighting instead of absorbing and using properly right now - includes a few random things like vitamin B, magnesium, and Omega-3 along with the usual food suspects like dairy, red meats, nightshade vegetables, gluten, refined sugar, coffee and caffeine, and any chemicals or preservatives.

It's going to be a long couple of months, but it will be worth it if I can feel better. It's fascinating to me that - through her own very unique 'diagnosis' process - she identified virtually identical challenges as my naturopath saw in my live blood analysis years ago. It gave me lots more confidence in what we're doing.

The most important thing to note is that I left my first appointment feeling HOPEFUL. That's an emotion that I cling to like a person drowning in the ocean. This doctor honestly believes that she can help me. She has a track record of doing exactly that. And I'm sure as heck going to let her try - and do everything I can to make this process successful. NO REGRETS.

In the meantime, I'm also scheduled to see my rheumatologist again later this week and I'm hoping to get a letter from him that recommends I pursue further treatment at the Mayo Clinic (with the Manitoba government covering the expenses). We're praying like crazy that this might happen... The Mayo Clinic in Rochester, Minnesota has a full Fibromyalgia Clinic and I've heard from several people that were helped there. Again, NO REGRETS. I'm going to push with all the power and energy I have left to make it happen, and then whatever will be will be.

That's all for now. Lots more to talk about soon. For right now, it feels good to have a plan and to be DOING SOMETHING.

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Best Laid Plans

I can't stand it when life doesn't follow the plans that I've made. (That probably wasn't a newsflash, was it?)

I went to bed last night with the best intentions for today. And it's just NOT GOING TO HAPPEN.

Today began with lots of pain, lots of fatigue, and lots of frustration. It also began with Starbucks (thanks, Geoff!) - but I digress. I'm supposed to be starting on an aggressive new treatment plan with a new doctor and I'd planned to start tomorrow. Because so much of what we're doing depends on me totally revamping the way I eat, I needed to do a big grocery shop first. One that couldn't happen with Briony along, both because of how much I can physically handle today and because I need to read EVERYTHING to make sure that the things I'm choosing to put in my cart are 100% okay for me to eat.

I did it. I don't think anyone is more surprised than I am. Geoff watched Briony this afternoon and I managed to do Superstore, Bulk Barn, and get back home again in 90 minutes.

GO LINDSAY.

Of course, I'm capital-letters EXHAUSTED now - and the day isn't nearly over yet - but I feel so much better just knowing that I'm ready to go in the morning.

I'd be lying if I said I wasn't completely intimidated by what's going to happen here tomorrow. I've done some pretty extreme eating under the guidance of my naturopath before, but this plan's just a little bit crazier. No gluten. No dairy. No soy. No refined sugar. No coffee or caffeine. No preservatives or chemicals. No potatoes, tomatoes, or peppers. That's not everything... It's the summary / tip of the iceberg (and why I've dubbed this my 'psychoallergenic' diet). As a side note, I've never been TOTALLY off dairy before - I've always been able to have some butter + plain yogurt. For some reason, the NO dairy (together with no soy) is kind of freaking me out.

The first two or three weeks will be tough. After that, my body will stop craving some of the things I haven't been feeding it - and I'll start to have more of the energy I need to be able to cook everything from scratch (and with this attention to detail).

I'll try to make sure that this doesn't become a food blog, but I'm also going to do my best to share the recipes that we're loving over here - both to help others in my situation and to help friends who are trying to accommodate me.

I'm worried. I'm tired. And I'm painfully aware that I HAVEN'T EVEN STARTED YET. But meals are planned for the rest of this week, and I have what I need to make them. So, OFF WE GO!

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Wednesday, December 22, 2010

Holiday Season Optimism

I'm scraping together every ounce of holiday season optimism I can muster and going to meet a new doctor today. I don't know how many times one human being can possibly get her hopes up - hoping that THIS might be the therapy that could finally help me get one step ahead of my fibromyalgia - but I'm going to try it again today...

Honestly, I'm questioning it a little bit. I booked this appointment three months ago - this is how long it took to get in - and I was enthusiastic then. I'm not feeling enthusiastic about ANYTHING right now. The events of this past week have thrown me for a little bit of a loop and it's been full-on WORK to drag myself out of bed every morning. Yesterday, I was near tears and negotiating with Geoff to just let me hide in bed all day. Not Lindsay style. (Yes, I started back on my happy pills again today as a precautionary measure.) The stress is sneaking into every part of my body and I physically feel like I got hit by a car. I could hardly manage to wash my hair yesterday because the muscles in my arms felt like I'd spent the entire previous day lifting weights. Weird. But such is life with fibro.

I'm not sure I'm totally feeling it, but I don't want to make a decision today and then regret it and need to wait another three months for a second chance. So my mom is coming to play with B and Geoff + I are heading downtown in a few minutes to go see what happens.

I've tried a lot of things. Some predictable. Some a little off the wall. This is the craziest idea I've pursued so far. By far. Hands down. No question. But WHAT THE HECK. You don't get big rewards without taking chances.

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Friday, November 26, 2010

TGIF

Today was totally one of those days where I knew before I had even opened my eyes that things were unlikely to go well.

I had a terrible sleep and woke up in all kinds of pain - including a weird neck cramp that's contributing all kinds of joy. We had about 30 minutes to get out the door and headed in the direction of Briony's dance class. And our glue traps remained mouseless all night long. Argh.

I should have gone back to bed. I should have taken two minutes to take a deep breath and point myself in the direction of a good day. I should have stopped and had a cup of coffee + a cocktail of drugs. I should have done anything but get dressed and soldier stubbornly on, because that has only made it worse.

The end result has been a day where I feel like I've been sabotaging myself. It's been yucky. I'm counting down until it's over, and I seriously cannot wait to start over again tomorrow.

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Thursday, November 11, 2010

Doing Our Best

This has been one of the hardest weeks I’ve had in a while.

I’m not even sure why. We started out with such wonderful intentions. But work EXPLODED for me this week - to the point where I cried about it. Kind of a lot. And then Briony’s been higher maintenance than usual. And then I flared up to the point where walking became incredibly difficult. And then Geoff’s recovery kind of took a baby step back in terms of pain. And then I got sick - real, old fashioned cold + flu sick.

Oh, and did I mention that this weekend is Briony’s birthday party AND Geoff’s birthday? OF COURSE IT IS.

I’m not really proud to admit that I crumbled. The other day just before dinner time, I ended up in bed in the dark, sobbing and seriously considering never getting out of bed again.

But I did.

And we’re doing our best over here. Fortunately, our incredible friends and family have stepped up and helped ‘our best’ be more than enough this week. My mom came and did laundry, a few people surprised us with food, and Emily took me grocery shopping last night (and even unpacked it all into my fridge + cupboards when we got home).

Briony’s party - and our modest little birthday celebration for Geoff - won’t be *quite* everything I hoped and dreamed they would be. The house isn’t going to be as clean as I’d like it to be. And that’s okay. I’m looking forward to this weekend, and celebrating the two people in this world who took me from ‘just me’ to a full-on little family - and make every day totally worth getting out of bed for.

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Friday, November 05, 2010

Friday Smile

So I just had a super encouraging phone call from the Mayo Clinic. It's looking more and more likely that I'll be able to see their fibromyalgia specialists - and soon. THANK YOU, GOD. Now if we can just win the lottery to pay for it... :)

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Thursday, October 28, 2010

A Few Very Legitimate Tears

I don't think that I take Geoff for granted. I'm pretty sure that I've always been aware of all the ways he helps me out and steps in to fill the gaps left by my chronic illness... So I'm not sure what the universe is trying to prove.

All I know is that it's really, really hard to be the person in our family who's holding it all together. It sucks to have to do the big Superstore shop and run in at Costco and fill up the car and drive myself to work and take out the garbage - on top of all the Lindsay Things that I usually take care of (that somehow filled a WHOLE day and took ALL my energy before).

I ended up in tears a few times today - and what makes that super scary is that we still have Libby here, helping nonstop from 07.30 until well after Briony's in bed. And I only made it into the office once this week. And we still have some things in the freezer that our lovely friends have dropped off for us.

But we survived another day.

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Tuesday, October 26, 2010

Manic Tuesday

I'm having my Monday on Tuesday this week.

Yesterday was a pretty good day. Actually, now that I stop and really think about it, the morning was TERRIBLE - so it must say something about the rest of the day that I just labelled it 'pretty good,' don't you think? Either that, or I've seriously changed my definitions of 'good' and 'bad' days given recent events... :)

Sunday night was one of the worst nights our little family has had in a long, long time. Briony went to bed super late (not for a lack of trying) and then was up twice during the night and then decided that 6 am was morning. It was beyond UGH. And have I mentioned that I'm sleeping on the couch? It just doesn't work for both Geoff + I to be in bed right now with his stupid messed up leg, so I've been on the couch for almost a week now. It sucks. My body is SCREAMING at me, but there's really no better option - and we all know it's super temporary. Anyway. I digress. Fortunately, Geoff + Libby were up around 8 am and sent me back to bed (my REAL bed) until 10 am. Briony + Libby + I ventured out then for a couple of hours of shopping.

That might have been the worst mommy mistake I've made so far.

Briony was in a foul mood and we had our first-ever Screaming Toddler Throwing a Tantrum in Public Experience. I know it's a right of passage, but I was reeeeally hoping to avoid it altogether just by being an awesome mom.

HA.

Anyway. The good news is that we made it home, fed her some lunch, and then she had a perfectly uneventful afternoon nap. I managed to shower and get some client work done. Libby did a Starbucks run and delivered a Pumpkin Spice Latte to calm my nerves. And the rest of the day was actually pretty great. I ended it off with a Girls Night Out - Pizzeria Gusto and One Flew Over the Cuckoo's Nest at MTC - with my mom and her two sisters. Lovely. I may have even had a smile on my face when I got home.

I had a super hard time falling asleep, but when I did, I slept until 9.30 am. So did Briony. OH GLORIOUS SLEEP. Except for the part where I'd been planning to be at work for 10 am today.

So maybe scratch all that. I'm having TWO Mondays this week.

After my abrupt realization that I really should have set my alarm, I rushed around getting ready this morning, and my hair looks like shit in this ridiculously humid weather (totally one of those rare days when I curse myself for getting rid all my hair because just throwing it up used to be an awesome option on days like this). I ran into Starbucks and witnessed what I presume was a freelance client interviewing someone new (and suspiciously writer-looking... I totally walked up and said hi because I'm a little bit bitchy like that). I then drove downtown in the pouring rain, parked, and navigated the area of Portage + Main with an umbrella in one hand and a coffee in the other on my way to the office (an Olympic feat if there ever was one, and also probably how Mary Poppins started). My day has been a mix of interesting meetings + surly coworkers, but I know I get to leave before 2 pm for a massage today.

It's really almost impossible to be grumpy when you know you're less than two hours away from a massage appointment. And that's what I'm clinging to today.

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Sunday, October 24, 2010

How We Are Doing

So many people have been asking how we're doing. It's completely uncharacteristic, but I really have a hard time coming up with an answer.

We're managing. We're surviving. We're working very hard to take things day by day.

It's so tricky, because we're fully aware that this is NOT a disaster. It's a nuisance. But it's a significant nuisance in our world because we didn't start off as a normal family. We were already a family with a chronic illness - and now the one able-bodied adult in our household is more injured than I am. This impacts us in so many ways, right down to the mundane fact that the person who usually runs stairs for me when I forget something downstairs is not only not running stairs for me anymore, but he's also forced to ask me to run them for him.

Geoff's doing really well, and is starting to be a little bit more mobile in terms of getting up and down the stairs, etc - but he hasn't left the house since the hospital and I don't anticipate that changing anytime soon. He's off T3s but still needing very regular painkillers - and, of course, the brace that is quickly becoming an extra (super annoying) family member.

It has been an absolute godsend to have Libby here. She's taken on so much of the day to day care of Briony and so many details that keep our household running. I can't even tell you how it makes a difference in my day to wake up and find the dishwasher has already been cleaned out. And don't underestimate the value of Briony Duty... Our normally very easygoing toddler has been replaced with one who's easily upset, quite insecure, and downright terrible at bedtime (Libby's been up there with her for well over an hour already trying to get her to settle down... and we're talking about a kid who - DON'T HATE ME - can virtually always just be tossed into her crib and happily left for 13 or 14 hours). We're all being very patient with her because we understand how her world has been turned around this week, but it's capital-letters TOUGH.

On Day Eight of this fiasco, the adrenaline of the crisis is wearing off, and what's left in its place is exhaustion and pain (with a side of panic when I think that we've got another six weeks of this to go before life will even *begin* to resemble anything normal). I've been working very hard to schedule Lindsay Time and I'm taking lots of breaks so that I'm doing as well as I possibly can be when we need to say goodbye to Libby at the end of this week - but I have to question how those brief absences are impacting my insecure baby girl at home. See what I mean? TOUGH.

This week, I need to start to work more again, and it's making me want to cry to even imagine how to find the space in my life and in my head to manage that.

One day at a time... And there are bright spots in every single one of them. Watching Briony toddling around the house after Libby - her new favourite person in the world - and hearing them giggling upstairs until Briony is hysterical is so awesome. Awesome enough that it actually makes some of this drama and craziness seem worth it.

-

Some evidence that Geoff is alive and well. This was in the hospital before his surgery.



Briony thinks it's hilarious to pretend her foot is a phone.



Chillin' on the couch waaaay after Briony's bedtime. SIGH.

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Sunday, October 17, 2010

SERENITY NOW

So here's the general rundown...
TODDLER WITH A DOUBLE EAR INFECTION.
MAMA WITH AN ARTHRITIS/FIBRO FLARE.
MAMA WITH A PILE OF CLIENT DEADLINES.

Oh, and now we'll add:
GEOFF IN THE ER AWAITING EMERGENCY KNEE SURGERY.

I'm pretty sure this is one of those things that will become funny later. Right?

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