New Developments
For starters, I need to say thank you to everyone who's been leaving comments on my blog or emailing me this week. You have no idea how much your words of encouragement mean to me, and how they help keep me going. It's so cool that - when I feel like I don't have any hope left - your thoughts and prayers can help spark the little bit of hope that's buried deep down inside of me.Even more than that, I have absolutely no idea how I would have made it through this week - and working, no less - without Geoff. I don't even know where to start. He has been so incredible to me. His capacity to love kind of overwhelms me, in a good way - I just don't feel like I've done anything to deserve it.
Today, I woke up and I felt... BAD. I had absolutely no will to open my eyes. And when I tested out my arms and legs, I felt immediate sharp pain. I knew in an instant that my pain had increased again overnight. I was just getting used to a 'schedule' to my pain and my symptoms - and now it's all messed up. I had my 3 pm pain at 8 am, and my 8 pm fever started at 11 am. I'm miserable. But I'm at work. My lucky, lucky clients :)
A couple of new developments since yesterday's no-good-very-bad news:
- I've discovered that the Mayo Clinic has two fibromyalgia treatment programs. One is 1.5 days long and it's basically just a consult and education. The other is 3 weeks long and includes full multi-disciplinary treatment. There is also a week-long program at a pain clinic in Chicago that seems to be a good middle-ground option. They are extreme options, but they are options.
- I called and made an appointment for nutritional consulting, which will be annoying and expensive (and will more than likely rob me of my joy, ie. chocolate and coffee), but I don't care any more. I have an appointment for January 19.
- My icky physical condition means that I'll be missing a family funeral tomorrow. I don't know why that's affecting me as much as it is, but it is.
- Jessie dropped off Pugsly at our place this morning, so we can dog-sit this weekend. Should be interesting :)
- Geoff is going back to work tonight - he has night shifts tonight, tomorrow, and Sunday. Which kind of means that I'm on my own this weekend (plus Pugsly, I guess). I'm a little bit scared, but I know that it will be okay.
- I get my car back on Monday, which makes me happy. MPI released it earlier this week, and the repairs are going to be finished either this afternoon or Monday morning. Cool.
Labels: Arthritis/Fibromyalgia, Can You Handle The Truth?, My Life, The Boy
posted by Lindsay @ 12:34 PM
4 Comments:
I think you are an incredible woman (even though I only know you from your blog) for the way you are dealing with all that you are.
What I most admire is your will to look forward, to dig deeper, to try and find solutions. That says a whole lot of good stuff about your character.
You could be looking back, wishing about "when ...", but instead you are pro-active in looking for options that just might be the answer for your suffering and THAT is commendable.
Wishing you a better tonight than today and that your weekend improves steadily as the days go by.
I am so very happy that you have found some more options.
I love your fighting spirit.
Thanks, ladies. I needed those hugs today.
Nicole - You are so sweet... Your comments are always so insightful and encouraging. Thank you :)
Crystal - It takes a fighting spirit to know one. I've learned so much from you this year about giving to others even when you're hurting yourself. I think you're amazing.
Lindsay,
I just wanted to tell you that reading your blog has really put my life into perspective this week. I feel so uncomfortable in these last pregnancy stages but I have stopped myself from complaining because this is a choice that I have made and it is an means that will bring me to a fulfilling end. But you push through so much that is not your choice and experience discomfort often yet your blog is not a constant "complainer fest." I love how you are honest but your words are so strong and determined. I always take my health and mobility for granted; these last couple of weeks I have got only a glimpse of what so many people live in their every day lives. Thanks for sharing your struggles and your triumphs. I pray that you will once again find a light at the end of your tunnel.
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